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Patient Dissatisfaction



My cousin, Edith Nalo, is a nurse in Tennessee working with Oncology patients. Today, she posted on Social Media an article about patient satisfaction scores as they relate to hospitals in The Atlantic. It is well worth your time to read The Problem with Patient Satisfaction. Eventually, payment in home health and hospice will likewise be predicated in part on patient satisfaction.

If you have not heard of HHCAHPS or Hospice CAHPS, it isn’t surprising. The tasks required of the agency is to choose an approved vendor and pay them to do the work. The agency has very little to do with the data collection. A brief overview follows this post.

I couldn’t begin to state with a clear conscience that patient satisfaction is not important – even critical to the patient’s ability to heal. But, patient satisfaction is not a true measure of the standard of care. It never has been and it won’t ever be. In fact, The Atlantic’s article indicates that there is a negative correlation between satisfaction and outcomes.

There are so many ways that results can be skewed that the internet would probably run out of space if all of them were listed.  Here are just a few.

The most important factor is often unnamed and unable to be measured. Fear, especially in stoic patients, causes them to be overly ‘needy’. A person who feels that fear and anxiety are weaknesses find it very easy to call the agency ten times a day to ask a question about a medication they have been taking correctly for ten years. They are the patients who are afraid of running out of pain meds but when you make an extra visit you find that the bottle is still mostly full. And there are the patients that make you want to cry because they are so lonely and tend to hold you hostage at the door because they don’t you to leave. You may be the only person they have seen all week.

Another thing that Medicare totally disregards is that sometimes being a good clinician means allowing a patient to dislike you. We have all told family members to be careful with narcotic drugs for fear that a patient in pain and confused with standard dosing may take additional doses. The patient resents our interference with their medication if the family is diligent about following our advice. I’m okay with saving someone from an unintentional overdose even if it means a few hard feelings.

Finally, there is the questionnaire itself. 7 pages. You can find the home health questionnaire here. I am having a hard time imagining a typical home health care patient or their spouse zipping through the questions. Worse, some of the questions may elicit responses that say nothing about the agency providing care.

  1. In the last 2 months of care, how often did home health providers from this agency treat you as gently as possible?

Consider a patient who has recently had knee surgery.  Treating this patient as gently as possible may mean allowing them to stay in the bed instead of walking on a recently replaced knee.

  1. Would you recommend this agency to your family or friends if they needed home health care?

Whether or not a patient likes the agency enough to refer family and friends is not always a good indication of the quality of care.  An agency who fosters dependence by keeping an aide in the home too long will likely be recommended over an agency who sends an OT in early to facilitate the patient’s participation in ADLs long before it is easy for them to do so.

  1. In the last 2 months of care, did you and a home health provider from this agency talk about pain?

 Talking about pain is not the same as treating pain.  Even when treatment is unsuccessful, it is important that the patient’s orders and treatment plans are reevaluated when pain is present.  This question should include whether or not the agency tried to alleviate the pain or if the agency talked to the MD.

So, if a patient can stay awake and they are literate and have adequate vision and the questionnaire is completed, the information is still less than useful.  Even valid questions may pertain to care given by several clinicians and there is no attempt to isolate the clinician who needs education.  The agency may very well end up incurring the expense of educating an entire staff of clinicians when only one or two are leaving the patient without adequate information.

The Hospice survey is even longer.  You can find it here.

Building trust with a patient is far more helpful to them than being liked by them.  Compassion is critical to good care; sentiment is not.

Meanwhile, teaching your staff the questions that will be asked of your patients may help your scores by ensuring that they emphasize that all that information about Pain they are trying to get from the patient is because a pain assessment is very important, etc.  Use the same vocabulary the patients might hear later.  It is my recommendation that you do not script what your nurses say as is recommended by other experts.  If you do, be prepared to have shrewd patients recognize acting instead of authentic communication.

As far as dealing with the fear and anxiety of patients who become overly dependent on the agency, I would like to hear your thoughts by emailing me or posting in the comments.  Could be a good topic for another day.  If we could all get a handle on how to provide for those needs, life would be better for a whole lot of patients.

HHCAHPS Cliff Notes
  1. Medicare mandates that a standardized questionnaire be given to patients.
  2. Third party vendors are approved by Medicare and collect the data for the agency.
  3. The data is collected via telephone or written questionnaire.
  4. Data is then aggregated and results are posted on Home Health Compare.
  5. Your results are posted along with a comparison of how you perform compared to other providers and the national and state average.
  6. Home Health agencies can view results at Home Health Compare.
  7. Hospice results should be posted when three continuous quarters of good data is available.

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